07/19/11 Mid-Summer Randomness

Unfortunately there’s nothing new to report in regards to my mystery health issue.

We did no rides this past weekend but year-to-date total mileage ridden for me is now just over 7100.

Four family birthdays have been celebrated so far this summer, which included taking E to Baltimore for an overnight adventure for her special day.

The weather here has been all over the place, from hot and humid days in the mid-90°s to nights when a blanket was an absolute necessity.

Last week C’s diagnosis of HLHS was added to the Social Security List of Compassionate Allowances Conditions. She doesn’t qualify for benefits now because of our family income, but she will once she turns 18.

I have almost four of my Top 10 List of Things To Do This Summer completed. The ‘almost’ is getting Nandy’s allergies under control. She’ll look good for a few days and then has another flare-up. As least we haven’t had to use the cone of shame in a while.

I’ll do an update on the entire list at the end of summer.

07/16/11 Icing Smiles

I learned about Icing Smiles on Facebook. They are a non-profit organization based out of Maryland ‘that provides custom celebration cakes and other treats to families impacted by critical illness of a child.  We understand that the simple things, like a birthday cake, are luxuries to a family battling illness.  Our goal is to create a custom cake for the ill child or their sibling that will provide a temporary escape from worry and create a positive memory during a difficult time.’

That was about a month before C’s 16th birthday so I decided to contact them. She was quickly approved. Not long after I received an email that Sister’s Bake Shop would be making the cake. C spent a lot of time looking at cake photos on both the Sister’s website as well as Icing Smiles. Since her birthday is the 4th of July, she has often had red, white, and blue celebrations and chose those colors again this year along with a request for roses.

The cake ended up being exactly what she wanted; the smile on her face when she first saw it was priceless. The kindness and generosity of these types of organizations never fails to amaze me.